Nikki J
Moderator
- Joined
- Mar 22, 2012
- Messages
- 17,108
- Reason
- PALS
- Diagnosis
- 04/2014
- Country
- US
- State
- MA
- City
- Boston
Does she want to bank her voice? Looking into how she wants to communicate if she does lose her voice first would be helpful.
For swallow too maybe consult a speech therapist for guidance on swallow tips and food texture. They can also advise on speech.
It is her right and choice not to do respiratory support and a feeding tube. You might want to look into palliative care if she is not ready for hospice ( and don’t do hospice until you have all equipment wanted particularly the power wheelchair in her possession ( not just ordered)
For swallow too maybe consult a speech therapist for guidance on swallow tips and food texture. They can also advise on speech.
It is her right and choice not to do respiratory support and a feeding tube. You might want to look into palliative care if she is not ready for hospice ( and don’t do hospice until you have all equipment wanted particularly the power wheelchair in her possession ( not just ordered)