My mom may be in the last week maybe two
- She woke up having difficulty to breath, her oxygen reads 89-93 and her pulse was as high as 133bpm. We gave her her meds and her pulse is now between 113-110. Her oxygen drops to 89 then up to 93. Blood pressure : 90/70
- She's taking morphine for air hunger, every he as needed and lorazepam for anxiety and agitation every 2hrs. We're giving her. Nurse is working with with dose and strength of meds to get her to a confortable state. I think we got it. She finally slept more through the night and is now napping.
- She's refused feedings, so she's only had about 120ml of her jevity (she refused anything else) and about 300ml of water a day for the past 4 days. Urine output is darker but daily still. Her bowel movements are more far apart and darker as well.
-She's been veeey anxious, agitated, confused and like shes doesnt really kniw what she wants or needs. Meds only seem to take the edge off at times, especially at night.
*-She was sleeping on and off for 15-20 minites. Its as if she is fighting to stay awake, besause she does look so tired. Last night, she was able to sleep 2-4hrs and today she has slept most of the day.
-She doesn't want to be alone and has asked my sister to lay by her, or stay awake slwhile she sleeps. She want to be taken to her recliner and back to bed several times a day and contantly asked to be readjusted, reclined or elevated. So of course we do. Can't imagine how she must feel right now, so anything to keep her comfortable.
-She's down to 100lbs from the 120 she weighed back in april.
* Yes, definitely,* our goal at this time is comfort and to keep our promise that she won't die feeling like she's* sufocating. Thank you guys for your words of encouragement.
P.s. ALS sucks!!
