- Jan 30, 2008
- Loved one DX
My mom was diagnosed w/ ALS on 1/15/08. Her symptoms began in the summer of 2007 and she has undergone months of testing to be handed this diagnosis. Her symptoms seem to be progessing so quickly. Her speech is getting worse, she is having a lot of trouble getting up from a sitting position, her arm usage is pretty low & she seems to be coughing and choking more. My family and I do not know what to think. Some of the posts I have read seem to have slower moving symptoms. Does this mean that she has a shorter life expentency? I'm just having a really hard time seeing her so dependent. She has always been the strong force in our family. She has not even really talked about her diagnosis with my sisters & I. She has made a couple of comments but has not discussed anything serious. I just feel so overwhelmed. There is so much information out there but it seems there is no norm for this disease. What about the drug, Rilutek? How has it worked for others?