Mom of 4-

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bakemydayorders

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Hello,

Thank you in advance for reading.

All of this started after getting Covid in Sept 21. My calf muscles were tight (pre-cramping). Then came the full body twitching (Dec), internal vibrations and right left feels wobbly and weak- balance issues on it at this point.

I saw a neurologist in January and have had every test. No answers. Emg/ncs showed carpal tunnell in arm and doctor mentioned sciatica but told me it is not even enough to put on the report. Entire leg/foot tingles when driving.

Things got a little better but the last 3 weeks I am now up ALL night with right leg cramping and twitching is now locaized to legs and glutes. It cramps all day as well. I have tried every supplement. My gait has suddenly changed. Can still do heel and toe walk but I am lifting my right leg higher. My neurologist said to go get a 2nd opinion.

I am frustrated. I want to play with my kids, but it is hard. Could I have done my EMG too early since I got into a neurologist pretty quickly after symptoms had started. They did it the end of January on my right arm and leg. I am seeing a 2nd opinion on Monday. I keep telling the neurologist, I would just like help no matter what is wrong. :(

Thanks for your time,
Emily
 

affected

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Please read this post really carefully as it answers much of what you are asking.
None of what you report even remotely resembles ALS.
I hope you get answers soon, but the only way that will happen is if you work with your doctors, and go get that second opinion.

 

lgelb

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If there is sciatica, it might be that a spine problem is causing the leg problem. Presuming the neurologist sees nothing of concern, I would ask for a referral to physical therapy, which can often help.

I see no reason to think of ALS.
 

bakemydayorders

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Thank you both for taking the time to reply. 💞
 

bakemydayorders

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The cramps are now so bad, they are happening every 30 seconds. I am scared. Haven't slept in forever. :(
 

affected

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Please return to your doctor if this is the case.
It has nothing to do with ALS but you should take all concerns to a doctor if they are impacting on your sleep.
 
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