awhite1027
New member
- Joined
- Dec 10, 2012
- Messages
- 5
- Reason
- Lost a loved one
- Diagnosis
- 11/2012
- Country
- US
- State
- MA
- City
- Winthrop
My mom was diagnosed last Thursday with early onset ALS. So far she is slurring her words and having problems swallowing. The other night she was laughing so hard she started to cry because she couldn't catch her breathe. My mom is one of the strongest woman I know and to see her like this is breaking my heart. I don't understand where this came from and why she has to suffer. She fractured her ankle falling down our stairs, so she is losing her balance as well. My dad told me the diagnosis through a text message while I was at work. When I got him on the phone, he was crying as much as I was. I have never heard him that upset before. That scared me more than anything. Right now she is still working so its good she is keeping busy. This is all so new for us, obviously. My sister flew in the following day after we found out and my brother is making arrangements to fly back from overseas to be here for Christmas. I don't want to make her feel any different but we are all taking this really hard. We are learning about this disease mostly from the internet and I don't know if the more information I get is making me feel worse or helping us to cope. I just don't know what to do.