RosaLee
New member
- Joined
- Jul 5, 2008
- Messages
- 1
- Reason
- Loved one DX
- Country
- US
- State
- California
- City
- Manteca
HI
My mom who is 85 years old had fallen on a rug sometime in Feb, 2008. I took her to a neurological surgern who looked at her MRI and said she had Spinal Stenos and then to a Medical Neurology who did a electro diagnosis and found a pinch nerve. At this time she was loosing her mucle on her left leg and her foot was very swollen up to her knee. She was still able to use her right leg. The doctors felt it had to do with her fall. Feb she was using a cane and then started with a walker in March and then a wheel chair in April. Now she is bed ridden and can't even move herself from side to side. She is constantly have to urinate and very costipated. She was also diagnosed with DCIS in her breast which is pre breast cancer. Watching her getting worse month by month I started trying to get her into UCSF and finally got to see Dr. Weinstein who could not see anything that cause her symptom, and he made an appointment to see a Neurologist who then came in and examine her and felt it was ALS. We are suppose to meet with the ALS doctor this Wednesday and perform a ELM. In the last week her health gone decline very fast, she is in the hospital, we had her at home with care 24 hours, but she was never comfortable and end up in the hospital three times, she started vomiting and could not stop, end up being a ucler. She is starting to choke and can't eat. Has lost complete muscle on her left leg, her hands are getting weaker and shaking and her voice is getting very weak. The doctor wants to insert a feeding tube. She had decline to that years ago, but is thinking about it now, but wants imput. I would love to still take her to the appointment this Wednesday at UCSF but she is to weak, it's a 1 to 2 hour trip, and then she would still have to wait around for four hours, then we could figure out how to keep her comfortable. Very frustrated, any suggestions.
My mom who is 85 years old had fallen on a rug sometime in Feb, 2008. I took her to a neurological surgern who looked at her MRI and said she had Spinal Stenos and then to a Medical Neurology who did a electro diagnosis and found a pinch nerve. At this time she was loosing her mucle on her left leg and her foot was very swollen up to her knee. She was still able to use her right leg. The doctors felt it had to do with her fall. Feb she was using a cane and then started with a walker in March and then a wheel chair in April. Now she is bed ridden and can't even move herself from side to side. She is constantly have to urinate and very costipated. She was also diagnosed with DCIS in her breast which is pre breast cancer. Watching her getting worse month by month I started trying to get her into UCSF and finally got to see Dr. Weinstein who could not see anything that cause her symptom, and he made an appointment to see a Neurologist who then came in and examine her and felt it was ALS. We are suppose to meet with the ALS doctor this Wednesday and perform a ELM. In the last week her health gone decline very fast, she is in the hospital, we had her at home with care 24 hours, but she was never comfortable and end up in the hospital three times, she started vomiting and could not stop, end up being a ucler. She is starting to choke and can't eat. Has lost complete muscle on her left leg, her hands are getting weaker and shaking and her voice is getting very weak. The doctor wants to insert a feeding tube. She had decline to that years ago, but is thinking about it now, but wants imput. I would love to still take her to the appointment this Wednesday at UCSF but she is to weak, it's a 1 to 2 hour trip, and then she would still have to wait around for four hours, then we could figure out how to keep her comfortable. Very frustrated, any suggestions.
