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RosaLee

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Joined
Jul 5, 2008
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Loved one DX
Country
US
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California
City
Manteca
HI

My mom who is 85 years old had fallen on a rug sometime in Feb, 2008. I took her to a neurological surgern who looked at her MRI and said she had Spinal Stenos and then to a Medical Neurology who did a electro diagnosis and found a pinch nerve. At this time she was loosing her mucle on her left leg and her foot was very swollen up to her knee. She was still able to use her right leg. The doctors felt it had to do with her fall. Feb she was using a cane and then started with a walker in March and then a wheel chair in April. Now she is bed ridden and can't even move herself from side to side. She is constantly have to urinate and very costipated. She was also diagnosed with DCIS in her breast which is pre breast cancer. Watching her getting worse month by month I started trying to get her into UCSF and finally got to see Dr. Weinstein who could not see anything that cause her symptom, and he made an appointment to see a Neurologist who then came in and examine her and felt it was ALS. We are suppose to meet with the ALS doctor this Wednesday and perform a ELM. In the last week her health gone decline very fast, she is in the hospital, we had her at home with care 24 hours, but she was never comfortable and end up in the hospital three times, she started vomiting and could not stop, end up being a ucler. She is starting to choke and can't eat. Has lost complete muscle on her left leg, her hands are getting weaker and shaking and her voice is getting very weak. The doctor wants to insert a feeding tube. She had decline to that years ago, but is thinking about it now, but wants imput. I would love to still take her to the appointment this Wednesday at UCSF but she is to weak, it's a 1 to 2 hour trip, and then she would still have to wait around for four hours, then we could figure out how to keep her comfortable. Very frustrated, any suggestions.
 

happy

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Joined
Feb 11, 2008
Messages
203
Reason
Learn about ALS
Country
US
State
CA
City
Fair Oaks
Honestly, I am not sure how they would be able to diagnose your mom with ALS that soon. I mean I am wondering how so many of the people here it takes years for a diagnosis. Could it be spinal cord compression or something like that. I understand it can have the same symptoms. Hope your mom gets better.

Robin
 

Al

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May 25, 2004
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PALS
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On
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NW of Toronto
Hi RosaLee. Sorry to hear about your mom. Do you have transfer services down there? They are private ambulance companies that specialise in moving patients between home and hospital when just transport is needed. Up here they are staffed by certified medics. Did he mean a PEG tube or a temporary feeding tube while in hospital?
AL.
 

patricia1

Very helpful member
Joined
Sep 18, 2006
Messages
1,149
Reason
PALS
Diagnosis
7/1999
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US
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newjersey
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lopatcong NJ
Hi
I think at 85years of age your mother should be kept as confortable as possible Testing her would only stress her more and staying at a clinic for hour is a waste.
Whatever she has probably shouldnt be treated as the treatment is worse then the illness sometimes.

Pat1
 

Al

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PALS
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On
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To be honest I'm not sure I'd put my parent at that age through it either but I hate telling people that. Maybe I'm getting soft in my old age too.
AL
 

fiddleplayer51

Distinguished member
Joined
Mar 24, 2008
Messages
337
Diagnosis
03/2008
Country
US
State
VA
City
Harrisonburg
Hello RosaLee,
I'm so sorry about your mom, but I agree with Pat1 and AL. I think that it's too much to put your mom through at this point. Keeping her comfortable and tending to her needs would seem to be the most important thing now.
I didn't answer this post when it first came up because I didn't want to be the first to say it.
Peace to you, RosaLee, and best to your mom,
Jane
 
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