nwafriend
New member
- Joined
- Jan 21, 2008
- Messages
- 6
- Reason
- Loved one DX
- Country
- US
- State
- Arkansas
- City
- Centerton
Hi,
My mom began having problems with her right hand just before Thanksgiving. The doctor found some disc issues in her neck, assumed this was the problem, and she began physical therapy for the problem. Between Thanksgiving and Christmas, her symptoms began to worsen. It began affecting her entire right arm and her legs. She fell three times during this time frame. She began to lose the ability to button, zip, brush her teeth, along with other simple tasks. Since New Years, she has quickly progressed and has fallen a few more times. She can hardly get out of her chair without help now. She scoots along without picking up her feet, and she can hardly feed herself with a fork or spoon without making a mess. The neurologist have done multiple MRIs, electrode testing, and lots of bloodwork. They have ruled out stroke, brain tumor, parkinsons, lyme disease, along with multiple other diseases. Her electrode testing showed that her muscles were misfiring. I can sit in the chair next to her and watch her thigh muscles move and jump around. She is experiencing this throughout her legs, arms, and shoulders. Her dad died of ALS in his 50's, and his sister (my mom's aunt) also died from ALS. She is 53 which is the same age he was when diagnosed. The neurologist told her he was 90% sure of a MND, but did not have it pinpointed. She is traveling today to the University of St. Louis Health and Medical Center to see a more specialized doctor and possibly have a muscle biopsy. The only things that keep us from thinking ALS is a few other symptoms she is suffering with. She has begun to fight bladder incontinence, and makes 10-15 trips a day to the bathroom to keep from having accidents. She is also losing her hair which may just be from the stress of the past few months. She is also concerned because of the rapid rate of degression. She told me yesterday that it took my grandfather 2 years to progress to the point she has got to in two months. Any information or advice concering her situation would be greatly appreciated.
nwafriend
My mom began having problems with her right hand just before Thanksgiving. The doctor found some disc issues in her neck, assumed this was the problem, and she began physical therapy for the problem. Between Thanksgiving and Christmas, her symptoms began to worsen. It began affecting her entire right arm and her legs. She fell three times during this time frame. She began to lose the ability to button, zip, brush her teeth, along with other simple tasks. Since New Years, she has quickly progressed and has fallen a few more times. She can hardly get out of her chair without help now. She scoots along without picking up her feet, and she can hardly feed herself with a fork or spoon without making a mess. The neurologist have done multiple MRIs, electrode testing, and lots of bloodwork. They have ruled out stroke, brain tumor, parkinsons, lyme disease, along with multiple other diseases. Her electrode testing showed that her muscles were misfiring. I can sit in the chair next to her and watch her thigh muscles move and jump around. She is experiencing this throughout her legs, arms, and shoulders. Her dad died of ALS in his 50's, and his sister (my mom's aunt) also died from ALS. She is 53 which is the same age he was when diagnosed. The neurologist told her he was 90% sure of a MND, but did not have it pinpointed. She is traveling today to the University of St. Louis Health and Medical Center to see a more specialized doctor and possibly have a muscle biopsy. The only things that keep us from thinking ALS is a few other symptoms she is suffering with. She has begun to fight bladder incontinence, and makes 10-15 trips a day to the bathroom to keep from having accidents. She is also losing her hair which may just be from the stress of the past few months. She is also concerned because of the rapid rate of degression. She told me yesterday that it took my grandfather 2 years to progress to the point she has got to in two months. Any information or advice concering her situation would be greatly appreciated.
nwafriend