- Dec 26, 2011
- Lost a loved one
Well my mom isn't doing to good getting worse rapidly it seems. By her choice she started Hospice this past week. She is very weak and can barely talk and she has been having more problems swallowing food too. She is also getting other help to so for now on all her bills will be payed what ever my dads insurance doesn't cover medicare or something like that will up til age 55. They are even going to pay for a ramp to be put in. Working on getting a powered wheel chair so she can be more mobile. We went over all what my mom needs too. She is in the process of a voice box they are just programming it for her. I have started going there more often so she doesn't have to stay in bed all day and to help her out. Also she ishaving a hospice nurse once a week, and acouple of aids acouple times a week. Then some other nurses from community care should be able to come over too. Oh and a clergy person too. They are making a schedule so it covers when my sister or I or my dad aren't there that someone is able to come in to check on her. She still thinks she is going this year and isn't afraid of dying. My dad is having a difficult time w having hospice because he thinks they are taking away his part of caring for her. My sister is lowering her work hrs to be w my mom acouple days a week. I have about 3 1/2 weeks before my baby comes she is still going to be in the room when I deliver but don't think she will be able to stay w me like she planned. I wish she could I was looking forward to spend that time w her and the new baby. I just can't believe how much things are changing so fast. I am still trying to take it day by day and spending as much time w her that I can. I wish that her progression was slower so she could be around longer but I guess that's not part of Gods plan. She won't be going on any tubes or into a nursing home facility. She has a box in the fridge from hospice w pain meds including morphine. She hopes to go before she gets really bad. It seems so surreal and all a bad dream, but it isn't. I just hope that we have a great summer w her and are still able to some things w her w the kids like going to the park so she can enjoy what ever time she has left w us. The kids always makes her laugh and keeps a smile on her face. I wish she would have more of a will to live but she doesn't and isn't afraid to die. She is willing to go, if it would be her way she would go tomorrow. I know I don't now how she feels and everyone deals w it different. She said it would be different if she didn't progress so fast and could talk, eat and move better. But when she progresses its been affecting everything at the same time and not just one area which sucks. I just keep telling myself regardless of this disease God will take her when it is her time.