mommasgirl
New member
- Joined
- Jul 17, 2011
- Messages
- 9
- Reason
- Loved one DX
- Country
- US
- State
- Ca
- City
- Roseville
First of all I would like to say I have been a lurker here for a few months now. I want you to know my thoughts prayers go out to all of you diagnosed and your families. I have been in tears many times reading the stories of courage on this board.
I am searching for some advise. My Mom has not been confirmed with ALS, but it is still an option as they have not ruled it out yet.
In December she became ill with an upper respiratory infection that lingered for three months. In March she started having difficulty enunciating her words, couldn't whistle and started dribbling liquid when drinking. The first thought was stroke, but MRI and CT's ruled that out. She now has worsening symptoms including thickened saliva, her jaw locks at times, she aspirates and cannot speak almost at all. She has lost 30 lbs to date with fatigue and limb weakness as well.
They have stated it could be ALS and have done an EMG, but not of her tongue or cheek. They also mentioned nerve damage, but cannot find a source.
She is scheduled for testing at the university later this month that I plan to attend with her.
I am wondering what questions I should ask, what tests should be done etc as she has asked me to be her advocate. I live out of state and I am sure I am missing some info and this has been a difficult time not knowing what all has been done since she cannot tell me.
Thank you for your time and reading my post.
I am searching for some advise. My Mom has not been confirmed with ALS, but it is still an option as they have not ruled it out yet.
In December she became ill with an upper respiratory infection that lingered for three months. In March she started having difficulty enunciating her words, couldn't whistle and started dribbling liquid when drinking. The first thought was stroke, but MRI and CT's ruled that out. She now has worsening symptoms including thickened saliva, her jaw locks at times, she aspirates and cannot speak almost at all. She has lost 30 lbs to date with fatigue and limb weakness as well.
They have stated it could be ALS and have done an EMG, but not of her tongue or cheek. They also mentioned nerve damage, but cannot find a source.
She is scheduled for testing at the university later this month that I plan to attend with her.
I am wondering what questions I should ask, what tests should be done etc as she has asked me to be her advocate. I live out of state and I am sure I am missing some info and this has been a difficult time not knowing what all has been done since she cannot tell me.
Thank you for your time and reading my post.