my mom was diagnosed 3 weeks ago with ALS. She has had problems for the last year and a half, the doctors just didn't know what it was until they finally send her to Vanderbilt. I'm so scared, scared of losing her and of how things will be for her until she does go. This seems like such a hopless disease. My dad and I will be her primary caregivers, as I live with them. I hope I can do it right. How do I even start? I just want her to feel as good as she can, and I'll deal with my emotions later. Any words of wisdom or hope?
Jennifer
Jennifer