Cherise77
Active member
- Joined
- Jun 18, 2018
- Messages
- 72
- Reason
- Loved one DX
- Diagnosis
- 07/2018
- Country
- CA
- State
- BC
- City
- Vancouver
My family and I have been feeling so desperate and confused the past two weeks. My Dad went to doctor initially with weakness in right hand and some muscle wasting in arm (which we thought was from him favouring his left arm for the past year). Doctor sent him to neurologist and during the month waiting for appt he began having twitching in the same arm.
Neurologist performed a nerve conduction test and EMG on both arms. Left arm normal and the right has moderate prolonged latency and no conduction block. Only LMN affected as well.
MRI showed no nerve compression or damage only some minor disc bulges.
Blood work showed elevated CK enzyme and vit D deficiency. We’re still waiting for results of the G1-antibody (praying that it is elevated).
This waiting period of only really 10 days so far is awful! And I feel bad saying that because I know most people have been waiting for months sometimes years for a diagnosis. My Dad is feeling and noticing everything now and believes he’s having twitches everywhere and numbness and cramps in legs. We keep telling him a lot of this is probably due to anxiety being that it’s been a year of the same symptoms and would be strange if it was now happening everywhere in only a matter of days.
My question is has anyone else been diagnosed with MMN without a conduction block?
As well as can you be diagnosed with MND having only symptoms in one arm after a year?
Thank you for your time reading this. Trying to find some positive experiences to share with my Dad and lift his spirits.
Neurologist performed a nerve conduction test and EMG on both arms. Left arm normal and the right has moderate prolonged latency and no conduction block. Only LMN affected as well.
MRI showed no nerve compression or damage only some minor disc bulges.
Blood work showed elevated CK enzyme and vit D deficiency. We’re still waiting for results of the G1-antibody (praying that it is elevated).
This waiting period of only really 10 days so far is awful! And I feel bad saying that because I know most people have been waiting for months sometimes years for a diagnosis. My Dad is feeling and noticing everything now and believes he’s having twitches everywhere and numbness and cramps in legs. We keep telling him a lot of this is probably due to anxiety being that it’s been a year of the same symptoms and would be strange if it was now happening everywhere in only a matter of days.
My question is has anyone else been diagnosed with MMN without a conduction block?
As well as can you be diagnosed with MND having only symptoms in one arm after a year?
Thank you for your time reading this. Trying to find some positive experiences to share with my Dad and lift his spirits.