For those who are single and facing ALS alone, but married types can also chime in!
It seems the most of those with ALS on these boards are married and have a spouse that takes care of them. Then, there are those of us who live alone and have to face our decline alone. I am wondering how those of you who are alone are planning for your future. In addition to being alone, I am principally responsible for taking care of my 12 year-old daughter who lives with my ex-spouse. This means I must continue to work as long as I can. Recently, I have been experiencing more limitations in my daily functioning and the possibility of needing help is perhaps closer. Most of my fingers on both hands hurt when I put pressure on them and so my pinch strength and grip strength are being affected. We rely so much on our hands to conduct our daily activities that we take these for granted until they become non-functional. Any thoughts would be appreciated.
It seems the most of those with ALS on these boards are married and have a spouse that takes care of them. Then, there are those of us who live alone and have to face our decline alone. I am wondering how those of you who are alone are planning for your future. In addition to being alone, I am principally responsible for taking care of my 12 year-old daughter who lives with my ex-spouse. This means I must continue to work as long as I can. Recently, I have been experiencing more limitations in my daily functioning and the possibility of needing help is perhaps closer. Most of my fingers on both hands hurt when I put pressure on them and so my pinch strength and grip strength are being affected. We rely so much on our hands to conduct our daily activities that we take these for granted until they become non-functional. Any thoughts would be appreciated.