LILAMAR
New member
- Joined
- Sep 26, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
Hello all,
I am nee here. Ive been online for weeks now researching about this disease, symptoms and progression. My husband is the patient.
Symptom onset:
He was initially told months ago it could be peripheral neuropathy on his left side but after a sleuth of tests which I will attach for you to look at, his Dr. Isleaning more towards ALS.
He has always had left calf cramping, for over 10 years! He would wake up at night almost in tears from the awful pain. He has had lower back pain for 10+years, pain in both wrists. He has always tired easily from moderate activities which has always been odd to me since he is young, we met in 2007 and he is now 41. He has over the last 4-5 years complained off and on about mild numbness and tingling in hands and feet. In 2020 he began complaining of left hip pain. He thought it was his sciatica. Hip xray was normal. He wound up with a callus on his left foot in late 2021 which made it uncomfortable for him to walk and put his full weight on, this is when he started the limp, around January/February of this year. Limp only became worse over time and he began to feel some weakness with frequent left calf cramping. His left ankle has been swelling for the last 2 weeks now. He still gets up to work, walks around alot as he is still mobile. He has muscle twitching to both left and right arms, irs noticeable if you are looking at his arms. Overall I would say it is predominately his left side that is being affected more.
I am so worried about him! I want to help and I dont know how. Im scared yet feel numb. We have a 9 year old son that is so attached to him! It breaks my heart to see him struggle with his health.
Any guidance and advice will help me...please see if you can see anything else in the results that maybe we havent thought to ask or check for.....
Thank you all.
I am nee here. Ive been online for weeks now researching about this disease, symptoms and progression. My husband is the patient.
Symptom onset:
He was initially told months ago it could be peripheral neuropathy on his left side but after a sleuth of tests which I will attach for you to look at, his Dr. Isleaning more towards ALS.
He has always had left calf cramping, for over 10 years! He would wake up at night almost in tears from the awful pain. He has had lower back pain for 10+years, pain in both wrists. He has always tired easily from moderate activities which has always been odd to me since he is young, we met in 2007 and he is now 41. He has over the last 4-5 years complained off and on about mild numbness and tingling in hands and feet. In 2020 he began complaining of left hip pain. He thought it was his sciatica. Hip xray was normal. He wound up with a callus on his left foot in late 2021 which made it uncomfortable for him to walk and put his full weight on, this is when he started the limp, around January/February of this year. Limp only became worse over time and he began to feel some weakness with frequent left calf cramping. His left ankle has been swelling for the last 2 weeks now. He still gets up to work, walks around alot as he is still mobile. He has muscle twitching to both left and right arms, irs noticeable if you are looking at his arms. Overall I would say it is predominately his left side that is being affected more.
I am so worried about him! I want to help and I dont know how. Im scared yet feel numb. We have a 9 year old son that is so attached to him! It breaks my heart to see him struggle with his health.
Any guidance and advice will help me...please see if you can see anything else in the results that maybe we havent thought to ask or check for.....
Thank you all.
Attachments
-
20220928_100132.jpg2.7 MB · Views: 287
-
20220928_100207.jpg1.5 MB · Views: 271
-
20220928_100401.jpg957.6 KB · Views: 244
-
20220928_100429.jpg982.7 KB · Views: 251
-
20220928_100507.jpg1.1 MB · Views: 262
-
20220928_100543.jpg946.3 KB · Views: 283
-
20220928_100556.jpg1.1 MB · Views: 284
-
20220928_100607.jpg1.2 MB · Views: 308