Hi Ginni,
Sorry I missed this. I have not been on for awhile. I have MMN. I have been on IVIG since January 2007. My symptoms actually started before 2002. That year I started having trouble holding a pen long enough to write a check. That has not changed much as my babyfinger (Right hand) is atrophied. The next finger on my R hand is beginning to curl, but I can make it straight with a little effort. I used to fall a lot. My legs tire easily and so I use a cane at airports and malls where I cannot use a grocery cart. I do not want to be knocked over or bumped. If I use a cane/walking stick, then I can move well and do not have to think about walking - it becomes an automatic process again. Grocery carts are a great adapted technology:grin: Most people do not know or can tell I have a disability as I get around OK. I get very tired and used to take more naps, but I began a very easy and slow exercise program last Jan, lost almost 30 pounds :lol: so far and feel much better. I am more tired close to treatment and some days are better than others. My progression with or without treatment is very slow, but I do get tired. I also have muscle cramps and Restless Leg Syndrom (RLS), both of which are a part of MMN. I drink lots of tonic water (has quinine) to prevent the cramps and vicodine for pain and RLS. (Only one vicodine a day 90+% of the time.) I hope this helps.
I am very blessed as I realized early on, that if I spent my time worrying about the future then I would use up my present. If the day should come that I need a wheelchair, then I will accept that on that day. My first DX was ALS and I realized then that worry would not change the future but only the present. Please don't waste your time in worrry.
There is very little information on MMN. I have looked everywhere. This forum is great and it does help to talk about the disease. If you have specific questions please ask and we will all see if we can help. God Bless you. Peg