Megan Dontain
Active member
- Joined
- Dec 21, 2014
- Messages
- 33
- Reason
- CALS
- Diagnosis
- 03/2014
- Country
- US
- State
- California
- City
- Temecula
Happy New Year everyone,
As some of you know my husband was diagnosed with ALS 3/2014 and given the standard 2-5 years to live. It is still unbelievable now even after 9 months. He is 32 years old. Now, not that this horrible disease has a specific mold, race, type, age or look...I would just like to give you a little perspective on my own personal journey through this. As I said before my husband is only 32 and grew up in southern California. If any of you are familiar with dirt bikes and motor cross, there is this riding group called the Metal Mulisha. They are extremely talented on their dirt bikes doing incredible stunts, they are also covered in tattoos. My husband looks like that. He has tattoos from his neck down to his ankles! And I love them. He rode BMX as young teen and then got a degree in automotive and diesel engines, but eventually became a self-employed commercial contractor. He always been very motivated.
When we got the diagnosis he was resistant to any treatment, not even wanting to follow up with his doctor. He has really started to decline recently and has just now started the Deanna Protocol. He seems hopeful. I've noticed a lot of mixed reviews on here about it and was just wanting some advice. Please help me, thank you....
Megan
As some of you know my husband was diagnosed with ALS 3/2014 and given the standard 2-5 years to live. It is still unbelievable now even after 9 months. He is 32 years old. Now, not that this horrible disease has a specific mold, race, type, age or look...I would just like to give you a little perspective on my own personal journey through this. As I said before my husband is only 32 and grew up in southern California. If any of you are familiar with dirt bikes and motor cross, there is this riding group called the Metal Mulisha. They are extremely talented on their dirt bikes doing incredible stunts, they are also covered in tattoos. My husband looks like that. He has tattoos from his neck down to his ankles! And I love them. He rode BMX as young teen and then got a degree in automotive and diesel engines, but eventually became a self-employed commercial contractor. He always been very motivated.
When we got the diagnosis he was resistant to any treatment, not even wanting to follow up with his doctor. He has really started to decline recently and has just now started the Deanna Protocol. He seems hopeful. I've noticed a lot of mixed reviews on here about it and was just wanting some advice. Please help me, thank you....
Megan