WeldonKA33
New member
- Joined
- May 17, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NC
- City
- Marion
Thank you all for answering questions everyday and being patient with people, I read the disclaimer about symptoms and it was very helpful.
I am a 33 yo male who is fairly healthy with no previous health anxiety or major health problems. In late March I began experiencing a recurring fasciculation in my left bicep muscle. It would twitch most of the day and wake me up twitching for about 2 weeks straight. I then started feeling twitches in other places including my hamstrings, calves, forearm and in my feet and occasionally hands. I am also having cramps, fatigue and some loss of balance leading ro a couple falls (never happens to me) I have also had pain in my neck and a very stiff neck at times making it difficult to turn my head. I have read other places that stiff neck could be an ALS symptom but haven't read anything about it here.
I went to my PCP and had lots of bloodwork including looking at mineral and vitamin deficiency, inflammatory diseases like arthritis and lupus, and thyroid issues. The only thing that came back was a low vitamin D level (I have been taking supplements since this news about 6 weeks ago).
I had a visit with a neurologist and received information that was different than what I have read on here and other places. The neurologist said ALS usually kills within 6 to 9 months which I knew wasnt the usual time frame. They also said that EMGs could show nothing one day and show ALS the next visit.
My question is do you think I should seek our a different neurologist before getting my EMG or allow the current one perform it?
I am also scheduled to relieve an MRI soon of my brain and cervical spine.
I am a 33 yo male who is fairly healthy with no previous health anxiety or major health problems. In late March I began experiencing a recurring fasciculation in my left bicep muscle. It would twitch most of the day and wake me up twitching for about 2 weeks straight. I then started feeling twitches in other places including my hamstrings, calves, forearm and in my feet and occasionally hands. I am also having cramps, fatigue and some loss of balance leading ro a couple falls (never happens to me) I have also had pain in my neck and a very stiff neck at times making it difficult to turn my head. I have read other places that stiff neck could be an ALS symptom but haven't read anything about it here.
I went to my PCP and had lots of bloodwork including looking at mineral and vitamin deficiency, inflammatory diseases like arthritis and lupus, and thyroid issues. The only thing that came back was a low vitamin D level (I have been taking supplements since this news about 6 weeks ago).
I had a visit with a neurologist and received information that was different than what I have read on here and other places. The neurologist said ALS usually kills within 6 to 9 months which I knew wasnt the usual time frame. They also said that EMGs could show nothing one day and show ALS the next visit.
My question is do you think I should seek our a different neurologist before getting my EMG or allow the current one perform it?
I am also scheduled to relieve an MRI soon of my brain and cervical spine.