LinCan
Active member
- Joined
- Sep 25, 2012
- Messages
- 67
- Reason
- PALS
- Diagnosis
- 08/2013
- Country
- CA
- State
- Ontario
- City
- Sault Ste. Marie
Hi once again. Two weeks ago I had another EMG, and was given the dreaded diagnosis of "most likely ALS". Before that, I was reassured that this was PLS, so a somewhat better prognosis. I immediately went into a kind of "brain fog" of fear and depression. I'm continuing on with that, while trying to decide on a nursing home or an assisted-living facility - how fast will it progress, can I do two moves, etc., etc. I have a good friend who has helped out so far but couldn't manage the really tough stuff that lies ahead, and my only son(newly married) lives about 4 hours away. I am almost 68, so had a good 65 years of health prior to the onset and really feel for those younger, but am still really off-kilter and very anxious about what lies ahead.
Good news was that my lung function is still very strong and no bulbar symptoms yet. Balance and legs are extremely unreliable, and arms are just starting to feel stiffer and weaker.
I am just venting and I guess searching for some sober second thoughts. It is great to be able to connect with those who understand.
Linda
Good news was that my lung function is still very strong and no bulbar symptoms yet. Balance and legs are extremely unreliable, and arms are just starting to feel stiffer and weaker.
I am just venting and I guess searching for some sober second thoughts. It is great to be able to connect with those who understand.
Linda