Mills syndrome

[Emanol]

Hello,

Some of you might remember my father´s case: early diagnosis of Parkinsons revoked, he was on the ALS / PLS limbo for a long time.

Afer a second opinion now confirmed by our primary neurologist, it appears my father has a very strange variant of Motor Neuron Disease called Mills Syndrome, which mostly resembles PLS but with spastic hemiparesis.

I have been looking for case reports online but there is almost no information about this variant. I was curious if someone else on this site was diagnosed with Mills Syndrome or had informsation about this.

Best,

Emanol

 

[KarenNWendyn]

There are some if you use the search function on this forum for “Mills syndrome”.
I don’t know if there are any other current members.
It is a MND/ PLS variant, so you’re welcome to keep hanging out here

 

[ShiftKicker]

I think there was one person on this forum who had been diagnosed with Mills syndrome in the last 5 years, but her diagnosis was eventually changed to something else that was not MND related at all. As Karen says, a search will bring up whatever has been posted in the past.

 

[Nikki J]

Fiona is correct. Green Queen from Australia was rediagnosed. However there was also a woman from Florida though she posted very little who held that diagnosis

 

[lgelb]

There are case reports and this is a succinct description.

 

[Emanol]

Thank you all!