Mills syndrome

Emanol

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Apr 3, 2018
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09/2017
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Hello,

Some of you might remember my father´s case: early diagnosis of Parkinsons revoked, he was on the ALS / PLS limbo for a long time.

Afer a second opinion now confirmed by our primary neurologist, it appears my father has a very strange variant of Motor Neuron Disease called Mills Syndrome, which mostly resembles PLS but with spastic hemiparesis.

I have been looking for case reports online but there is almost no information about this variant. I was curious if someone else on this site was diagnosed with Mills Syndrome or had informsation about this.

Best,

Emanol
 

KarenNWendyn

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There are some if you use the search function on this forum for “Mills syndrome”.
I don’t know if there are any other current members.
It is a MND/ PLS variant, so you’re welcome to keep hanging out here
 

ShiftKicker

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I think there was one person on this forum who had been diagnosed with Mills syndrome in the last 5 years, but her diagnosis was eventually changed to something else that was not MND related at all. As Karen says, a search will bring up whatever has been posted in the past.
 

Nikki J

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Fiona is correct. Green Queen from Australia was rediagnosed. However there was also a woman from Florida though she posted very little who held that diagnosis
 

lgelb

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There are case reports and this is a succinct description.
 

Emanol

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Joined
Apr 3, 2018
Messages
60
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Loved one DX
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09/2017
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SP
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NY
Thank you all!
 
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