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Cathyann

New member
Joined
Jan 3, 2016
Messages
3
Reason
Other
Diagnosis
06/2014
Country
US
State
CA
City
Huntington Bch
Hi everyone..I am new to this forum, but I have been searching for some type of support group. I was diagnosed with Mills Syndrome in June 2014. It was a long and tiring search (7 yrs and lots of tears), to come to my diagnosis. I saw 4 different drs., before seeing a ALS Specialist, who knew immediately what I had. This disease has effect my right side (I was rt handed) and I have adapted to using my left side. I would love to talk to anyone with this disease and to learn more about it (not a lot of info on the internet). thank you.
 
Is that a form of PLS?

We had several people come through here with Mills Syndrome. Use the search function to find their posts, which will give your their screen names.
 
Hi Cathyann-
The forum here has a sub forum for those with PLS. Lots of posts there that may be of use to you. Mills appears to be incredibly rare, but there are several references to it there.
 
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