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Lorie

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Loved one DX
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Lets Join together and take Action! This is an easy Link to locate and E-Mail your States Senators and Congressman. Lorie

Urge Congress to Join Our Fight for a Treatment Take Action!

Continue Funding for the Peer Reviewed ALS Research Program at the Department of Defense

We need your help today to continue critical ALS research taking place at the Department of Defense. Please ask your Senators and U.S. Representatives to request that the Appropriations Committee provide $5 million in funding for the ALS Research Program at the Department of Defense (DOD).

Background
Thanks to the efforts of The ALS Association and advocates across the country, last year, the Department of Defense provided $5 million to establish the peer reviewed ALS Research Program (ALSRP). The program is the only ALS specific research program
supported by the DOD. And unlike many other federal research efforts, which focus on basic science, the ALSRP is promoting translational research with the specific goal of finding new treatments for the disease. In fact, the ALSRP is modeled after The ALS Association's TREAT ALS initiative (Translational Research Advancing Therapy for ALS).

Since this year's budget process began in February, The ALS Association has continued to reach out and meet with Members of the House and Senate Appropriations Committee to request support for the ALSRP in FY 2009. However, your grassroots outreach is now needed as the Appropriations process moves forward.

Contact Congress TODAY!
Please contact Congress TODAY! It is essential that your Senators and U.S. Representative know how important this program is to our military men and women and to the entire ALS community in your state. A letter you can send is available in the Advocacy Action Center of our website. The letter also includes a sample letter your Members of Congress can send to the Appropriations Committee in support of the ALSRP. The deadline for sending this letter is Friday, March 15. So please contact Congress today. http://capwiz.com/alsa/home/


Make ALS a Priority
It is absolutely critical that you contact Congress TODAY. Over the coming weeks, Congress will make key decisions on which programs to fund next year and they will be bombarded with many funding requests which are competing for limited dollars. In fact, several other organizations have followed our lead and, this year, are requesting funding to start their own programs at the DOD. Therefore, we need to make sure our message is heard loud and clear. We need to make sure that funding for ALS research is a priority!

Please contact Congress TODAY!Thank you for your continued advocacy. Together, we are making a difference!

If you have any questions or would like additional information, please contact The ALS Association Advocacy Department at [email protected] or toll free at 1-877-444-ALSA.
 

trying to stay positive

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Joined
Sep 17, 2007
Messages
300
Reason
CALS
Diagnosis
08/2007
Country
US
State
Illinois
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Chicago area
Done!

Hi Lorie,
Thanks for the great link. It was super easy to do and I included a picture and a personal message. You are such a terrific advocate and warrior against ALS. I would like to do more, but somedays I am so drained (more emotionally than physically I think) I barely get the essentials taken care of. I hate this damn disease and what it is doing to my family. Sorry, I think I am just down today. My dear uncle passed this afternoon from an almost 10 month battle with cancer.

Keep up the great work, Lorie! Hope Tim is doing well today!
 

Lorie

Senior member
Joined
May 17, 2007
Messages
546
Reason
Loved one DX
Country
Uni
State
Alabama
City
Mobile
Positive

I am glad it was easy for you. Please pass it on to everyone you know. We Can and Shall make a Difference. (maybe that will be my famous quote)

Lorie:-D
 
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