Seedgo
New member
- Joined
- Jun 21, 2021
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- SU
- City
- sussex
Hello, Firstly - Thanks for taking the time to read everyones posts - many of which show no reason to even think about ALS. I have read the pinned posts and feel this is valid.
For background - I am in my early 20's and Caucasian.
I have had symptoms for around 1.5 years now - It started with my muscles shaking, Starting in one hand then spread to my whole body. It also started in my foot - after just 2 minutes of walking the bottom of my foot would ache lots.
Symptoms continued to get worse and around 1 year ago I noticed my leg felt weak (just one) - This then developed into constant fasciculations in my thigh as well as cramping type pain (pre-cramp?)
So this continued - My leg got weaker and my right leg constantly twitching - non-stop. Mostly my thigh but it kind of spread throughout my leg. I have to wear shorts now because it's so annoying - It's kind of like itchyness where I can just feel my leg twitches slightly touch my trousers.
So this continued, Next the same pattern occured in my right arm, weakness first and then the twitches started - It's also the same as my thigh - small constant twitching. It then spread to my right pectoral muscle and back. 99% of the twitches are in sided and 90% of those are in the same 4 muscles (bicep, thigh, pec and right shoulder.
My right side is tiring extremely fast - I write something on a whiteboard and after 10 seconds I have to put the pen down yet with my left (non dominant) it's fine.
Lifting my thigh and arm is quite difficult - pushing my thigh up feels extremely sluggish and I have to kind of "throw" it up . Same with my right arm - when I make a cup of coffee I struggle to manipulate the kettle and then I pass it to my left arm and it's completely fine. The muscles on that side are also extremely soft & wobbly. During any physical activity I feel the muscles flying around.
During when I try to exercise for example today - I did a 5 minute run. I felt my leg muscles in the knee, thigh and calf flying and jellying around as I ran and once I got home - Those muscles were DEAD. I mean I seriously struggled to move the leg because it was so tired but my left was fine.
I have seen 2 neurologists and had every test be clean but no EMG yet. 1st doctor found worrying symptoms like Hoffman's and brisk reflexes and spasticity in my leg (about 6 months ago). The last one (1 month) didn't really examine me and just said "it's anxiety and stress" and "I'm too young" (almost 25 years old now).
Whenever I stretch my muscles - My right side will twitch like crazy, I constantly feel like insects are running under my clothes on the right side, It's so annoying and scary.
What do you think of this? I try to not check my symptoms but given every test was clean but not the EMG I am thinking it's a high possibility. The weakness is causing me to flail my limbs around at this point.
For background - I am in my early 20's and Caucasian.
I have had symptoms for around 1.5 years now - It started with my muscles shaking, Starting in one hand then spread to my whole body. It also started in my foot - after just 2 minutes of walking the bottom of my foot would ache lots.
Symptoms continued to get worse and around 1 year ago I noticed my leg felt weak (just one) - This then developed into constant fasciculations in my thigh as well as cramping type pain (pre-cramp?)
So this continued - My leg got weaker and my right leg constantly twitching - non-stop. Mostly my thigh but it kind of spread throughout my leg. I have to wear shorts now because it's so annoying - It's kind of like itchyness where I can just feel my leg twitches slightly touch my trousers.
So this continued, Next the same pattern occured in my right arm, weakness first and then the twitches started - It's also the same as my thigh - small constant twitching. It then spread to my right pectoral muscle and back. 99% of the twitches are in sided and 90% of those are in the same 4 muscles (bicep, thigh, pec and right shoulder.
My right side is tiring extremely fast - I write something on a whiteboard and after 10 seconds I have to put the pen down yet with my left (non dominant) it's fine.
Lifting my thigh and arm is quite difficult - pushing my thigh up feels extremely sluggish and I have to kind of "throw" it up . Same with my right arm - when I make a cup of coffee I struggle to manipulate the kettle and then I pass it to my left arm and it's completely fine. The muscles on that side are also extremely soft & wobbly. During any physical activity I feel the muscles flying around.
During when I try to exercise for example today - I did a 5 minute run. I felt my leg muscles in the knee, thigh and calf flying and jellying around as I ran and once I got home - Those muscles were DEAD. I mean I seriously struggled to move the leg because it was so tired but my left was fine.
I have seen 2 neurologists and had every test be clean but no EMG yet. 1st doctor found worrying symptoms like Hoffman's and brisk reflexes and spasticity in my leg (about 6 months ago). The last one (1 month) didn't really examine me and just said "it's anxiety and stress" and "I'm too young" (almost 25 years old now).
Whenever I stretch my muscles - My right side will twitch like crazy, I constantly feel like insects are running under my clothes on the right side, It's so annoying and scary.
What do you think of this? I try to not check my symptoms but given every test was clean but not the EMG I am thinking it's a high possibility. The weakness is causing me to flail my limbs around at this point.