J Kathleen
New member
- Joined
- Jul 9, 2012
- Messages
- 2
- Reason
- Loved one DX
- Country
- US
- State
- NV
- City
- Las Vegas
Hello all - I found this site last week and am hoping some of you have insight to share. My mother has been diagnosed with ALS by a doctor at UT Health Science Center in Houston (originally diagnosed with CIPD by another Neurologist in town). He has referred us to Methodist / Dr. Appel for a second opinion and continued care, primarily because UT does not currently have the comprehensive services that Methodist offers under one roof.
I have seen a few threads on Dr. Appel and the Clinic here, but they seem to date back to 2007 / 2008. Does anyone have any current experience to share? We have an appointment for the 3 days of tests to begin September 17 (frustrating it is so far away). Mom has already been through all the tests, but we understand why we need to go through them again.
I mostly want to prepare my parents (and myself) mentally for what we will encounter. We have also been told he can be a little rough; we don't need to be handled with kid gloves, but the recent diagnosis has, of course, put our family in a bit of an emotional crises.
Thank you in advance for any feedback.
I have seen a few threads on Dr. Appel and the Clinic here, but they seem to date back to 2007 / 2008. Does anyone have any current experience to share? We have an appointment for the 3 days of tests to begin September 17 (frustrating it is so far away). Mom has already been through all the tests, but we understand why we need to go through them again.
I mostly want to prepare my parents (and myself) mentally for what we will encounter. We have also been told he can be a little rough; we don't need to be handled with kid gloves, but the recent diagnosis has, of course, put our family in a bit of an emotional crises.
Thank you in advance for any feedback.