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ellen s

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I have been an ALS patient for four years now on bipap 24/7 and have started experiencing an awful "metallic" taste and a burning sensation in my nose, lips, mouth, eyes and lungs. Has anyone else with a similar problem found anything that could help?
thanks ellen
 

patricia1

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It may be coming from the Bipap .You may have a sinus infection. Go see an ENT specialist He may have an answer. I dont think its from the ALS.


PAT
 

ellen s

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obviously i have spoken to a doctor about these symptoms with no answers i was hoping i might find somone in a similar situation thankyou for your response
 

CindyM

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I "googled" the metallic taste issue and there are a number of reasons, but the burning sensation in your eyes, throat and tongue might also be a clue. I guess if your doctors are not worried then that is a good thing, but still, it must be very annoying!
 

Al

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Does the bottom of the humidifier have a metal bottom? I have a friend with a CPAP that had the bottom of his start to corrode and little metal particles started floating in the water. Something to check.
AL.
 

ellen s

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thanks for the ideas im going to check into the humidifier see if that has anything to do with it im reaching here
cheers
 
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