mbmurray
Distinguished member
- Joined
- Jan 10, 2013
- Messages
- 117
- Reason
- PALS
- Diagnosis
- 01/2013
- Country
- US
- State
- VA
- City
- NOVA
Well I just got the word, I go for my screening visit week of Sept 9th. Only taking 25 participants, and with me living in VA, guess lucky I got this far.... First symptom coming up on 2 years, and diagnosis was in Jan so my timeframe is shrinking in terms of getting into trials...
I participated and completed the Cytokinetics tirasemtiv phase IIb trial in May and with me not taking Rilutek, this will probably be my last hurrah in terms of drug trials. This is only a phase I trial, so not sure what to expect. Hoping something positive comes out of this, I hate sitting around and going nothing to battle this (except taking supplements) and see myself getting weaker (arms especially)
I participated and completed the Cytokinetics tirasemtiv phase IIb trial in May and with me not taking Rilutek, this will probably be my last hurrah in terms of drug trials. This is only a phase I trial, so not sure what to expect. Hoping something positive comes out of this, I hate sitting around and going nothing to battle this (except taking supplements) and see myself getting weaker (arms especially)