long road
Although I am not Dx I was sent to 5 neuro's. I had very brisk reflexes,clonus and they all told me anxiety, depression and then everything else blamed on preganancy. It was not untill my palms went completely flat and my fingers started to curl before I was taken seriously, now I am being sent to the head neuro in Calgary. When my son was born I couldt barely lift him my hands were so weak I had problems with diapers a neuro came to see me I couldn't even hold up my left arm when they did the strength test or squeeze his hand. I pointed out my fingers, hands. His report came back no more tests recomended my weakness was from depression. I was crying cause I could not pick up my baby. A physiotherapist came in to see me while in hospital, she could see right away that there was atrophy in my hands and that my muscle tone was abnormal, she urged me to seek another opinion out of hospital. Here I was not able to pick up my son and they came in and told me my problems were depression and tried to put me on Zoloft. It was just sickening. So long story short for me has been 14 months since first sypmtom, 5 neuro's and am now at the point I have housecleaners, don't drive, my hands are messed and my forerarms shrunk. This is how bad I had to get to have Dr admit that I have a serious problem. I found a great gp and that makes all the difference. It has been along road,it's tough because friends and family start to wonder when all these dr's say your fine. I know I am screwed, I don't need a doctor to tell me that. It's just putting a name to my sickness. To say the least for me has been a long tough,road. I told my husband I would fight for myself until the end. Just be strong, you know your body better than anyone.