My wife's neurologist did not recommended the use of MM because she thinks that the muscle relaxation can be problematic specifically to the muscles involved in breathing. I understand that the use of MM basically aims to give some relief with problems related to spasticity and cramps, but have any of you (that had experience with this) noticed a negative effect, regarding breathing?
Ok I can't argue with a neurologist, I am not in their class of knowledge
, but I can report what I feel. I had taken IM (Illegal Marijuana) as an alternative to twiddling my thumbs. As I progress with the effects of ALS about 6 or eight months now I have noticed a few changes.
1. was losing weight (about a kilogram a week Kilo= 2.2 lbs.) that has stopped, I have held my weight for 3 weeks now. Interesting because M causes the munchies, so I have increased my calories intake (juke food). Dietary pros and cons left out. Object is weight control.
2. I have not choked 1 time since I have started to smoke. This is great and I am sure I need not describe choking misery. Although I was not chocking everyday I still have noticed a decrease in choking.
3. I have not noticed any relaxation in the chest muscles, I continue with my shallow breathing it does seem to become easier to breathe, less effort needed to get oxygen into my body.
4. Spasticity and Cramps, has decreased significantly, can't say all actively has stopped but the effect is really noticeable, :shock:
5. Attitude and general well being, off course one smiles this cheese eating smile when high but one feels different, if IR changes mode, escaping reality yes but why not the high and reduction of notable ALS symptoms is reduced. :twisted:
Therefore as long as I can inhale and smoke it, that is a problem because I am non-smoker but that has gotten better also, I will, if they want to jail me please do, Free coverage can't hurt all too much, ALS junkies, I can see and hear it now.
Be blessed and I hope people will look at this with an open mind. Because we do have alot of taboos and emotions around usage of drugs. Going to hell falling apart, whatever, we do have many dedicated doctors that can test this under clinical conditions and maybe someone not all because we are all the same but still all uniquely different individuals therefore with different effects or degrees of highs or relief. Whatever ALS is not nice and I pray that someone somewhere can come up with workarounds for symptoms, Just make our short lives a little more comfortable. I hate to say this but it is all about us ALS sickies. Have mercy on us!