Me again

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rogeriopaguilar

Active member
Joined
Aug 5, 2014
Messages
58
Reason
Other
Diagnosis
10/2015
Country
BR
State
São Paulo
City
Guarulhos
After a year now my diagnosis changed to "probable" mnd, unfortunately :confused:
 

GregK

Moderator emeritus
Joined
Jan 29, 2013
Messages
2,775
Reason
PALS
Diagnosis
11/2012
Country
US
State
CO
City
Colorado Springs
Sorry to welcome you to the club. 8^\
 

Atsugi

Moderator emeritus
Joined
Jan 11, 2011
Messages
5,190
Reason
Lost a loved one
Diagnosis
12/2010
Country
US
State
FL
City
Orlando
Roger, I'm both saddened and surprised. I was really hoping for some other diagnosis for you. --Mike
 

pizzaman

New member
Joined
Sep 13, 2015
Messages
1
Reason
PALS
Diagnosis
09/2015
Country
US
State
ar
City
yellville
I am sorry to hear this, I was officially diagnosed in 9/15 but is suspected months earlier
 

LifeEnthusiast

Distinguished member
Joined
Apr 13, 2015
Messages
322
Reason
DX MND
Diagnosis
04/2015
Country
CA
State
Canada
City
Somewhere In
Sorry for you diagnosis, Roger. I just went back and read your previous posts. It must come as such a shock. As you probably know, this forum offers lots of help and support. Welcome here, though I wish I wasn't saying that.
 

rogeriopaguilar

Active member
Joined
Aug 5, 2014
Messages
58
Reason
Other
Diagnosis
10/2015
Country
BR
State
São Paulo
City
Guarulhos
Thank you all... I will try to live as good as possible for as long as I can...
 

help1127

Active member
Joined
Nov 19, 2013
Messages
93
Reason
Other
Diagnosis
00/0000
Country
US
State
FL
City
Orlando
You say you got a probable diagnosis but you said your emg'so have been clean with only signs of facis. No upper motor neuron signs such as hyperflexia, clonus, etc. You have to have both in order to have an actual diagnosis. Sounds to me you need to see an actual expert in ALS as I believe you can't have a probable diagnosis without a dirty EMG, positive F waves, active digenervation. Don't give into that diagnosis. If I was you I would travel to an ALS clinical and have them give me a second opinion. Just doesn't sound right. Sounds like some type of cervical spine issues.
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,691
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
Help - you are a guest here mate.

Please read the stickies again - you should not be posting on any thread apart from one of your own in the Do I have section. I know you want to help, but this isn't the first time.
 
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