billbell52...I will "attempt" to put it into words...lol. My neurologist is great, she has her own ALS foundation & research group also. The problem is "her" foundation is 2 1/2 to 3 hours away and into center Philadelphia (I am from the country & my wife can't handle driving in the city). So I guess she is "hired?" by the MDA to come to a MDA clinic that is only 45 minutes from me and drivable for my wife. So seeing her is great. The rest of the clinic has lately kinda fallen flat in the overall process. They don't mention any trials (although I could enter them at the neuro's clinic in Philly, but that's not MDA). The PT & OT people that come in are just passing through within minutes. And this is my fault, but I don't get into any kind of long conversation with them because they will bill me separate, even if it's just common sense stuff. Most of the time there is not an MDA Rep there to stop in. Also, there is not always someone there to do the FRS. The speech therapist is always changing and there is a young girl now that didn't know anything about voice banking or software like Model Talker. So she wrote prescription for me to make an appointment at the Assistive Technology Department, which I did. When I went they also were not familiar with voice banking to put into a device someday, and they didn't know anything about Model Talker. On a final note...don't get me wrong, overall the MDA has been great. I have a stairlift from their loaner closet and they helped with the cost of replacing the battery's in my power chair. It has just been the clinic that has been for lack of better words "disorganized or unhelpful" as a whole.