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Thee General

New member
Joined
Jul 6, 2008
Messages
6
Reason
CALS
Diagnosis
3/2007
Country
US
State
Ca.
City
Fort Jones
Anyone who struggles with insurance issues or finding 'help' for this disease difficult. I highly recommend getting in touch with a MDA/ALS Chapter in you area or region.

I Registered with a Regional office in Eugene, Or., which covers my area here in N. Cal.

I was sent afew forms to complete, and before long I had been sent an appointment with Providence Hospital's MDA/ALS Clinic Team.

A Four person Team, neurologist included, evaulated me, which went very Positively and Smoothly. I was told I was Approved under The MDA/ALS Grant system.

I've had subsequent appointment's for the OT, Speech Specialist, Wheelchair evaluation, Barium swallow testing, and a Sleep study interview.

Last wednesday I stayed over at the Sleep Study clinic where I was wire up with an aray of overnite monitors to analyze my breathing and sleep process. I'll have results in early July to see if I qualify for a Bi-Pap.

During my 3rd appointment with the OT for a wheelchair evaulation, the OT and Wheelchair Vendor told me the MDA/ALS Grant was going to 'TOTALLY' Cover the bill for a New Permoble C300 powerchair with absolutely 'NO' out of pocket cost to me. Once we heard that abit of Emotional Liability was observed, couldn't believe it.

Being all I have for Insurance is Social Security Part A & B and the VA, there's been a struggle dealing with getting the application's that will give me a more comfortable future with my ALS Progression.

To sum it up, These Folks are Terrific, Effective, cut to the chase Professionals. If your having a difficult time, have no substantual insurance coverage, I highly recommend contacting a MDA/ALS Regional Clinic in your area.

Below is a MDA/ALS Regional Clinic Locator link.
Good Luck ~
Lee

http://www.als-mda.org/clinics/alsserv.html
 
Lee

It is very encouraging to read this. I am in the process of being diagnosed, and so far I have not needed any of the assistive devices or OT, PT, etc. Also, I am employed and have good insurance, for now.

But when I read on these forums about all of the equipment that folks need as their disease progresses, I worry about how all of this will end up being paid for.

I really appreciate all of the support that I see on these forums, and it is reassuring to hear about the ALS clinics, also. Where I live, they have both the MDA and the ALSA-affiliated clinics, and it is good to know that they will be here when I need them.

There is so much that is negative with this disease, it is really good to hear positive things like your clinic experience. Thanks

John
 
MDA is here for you

I encourage everyone to contact their local MDA office. We are here to help. No one who is diagnosed with ALS or any other neuromsuclar disease is turned away. We will cover the costs of MDA Clinic visits that is not already picked up by your insurance. We can also assist with the purchase of leg braces, wheelchairs & communcation devices.

There's more info on our website, www.mdausa.org
 
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