suemar
New member
- Joined
- Apr 24, 2006
- Messages
- 3
- Reason
- PALS
- Country
- CA
- State
- Ontario
- City
- Toronto
Hello All
I have been preliminarily diagnosed with ALS thru St. Mike;s Hospital and was extremely upset with the way the neuro handled it. He told me that u just die with ALS. I then went to Sunnybrook last Tuesday and saw Dr. Zinman who would not give me a diagnosis until he does another EMG and also wants family history and autopsy reports for my dad who had MS and uncle who had ALS.
Neuro from St. Mike's called me this week and after discussion he apologized to me and advised me that my blood test for treatable multi focal motor neuropathy came back slightly positive and wants me to come back for more tests. I have an apt. nxt Thursday. Not getting my hopes up but any news is good I guess. I have almost resigned myself to ALs and am getting my affairs in order. I can't believe how fast this hits u after initial onset. symptoms started in Mar and now I have trouble walking any distance and arms and hands r very weak. Has anyone else had this happen so rapidly?
I have been preliminarily diagnosed with ALS thru St. Mike;s Hospital and was extremely upset with the way the neuro handled it. He told me that u just die with ALS. I then went to Sunnybrook last Tuesday and saw Dr. Zinman who would not give me a diagnosis until he does another EMG and also wants family history and autopsy reports for my dad who had MS and uncle who had ALS.
Neuro from St. Mike's called me this week and after discussion he apologized to me and advised me that my blood test for treatable multi focal motor neuropathy came back slightly positive and wants me to come back for more tests. I have an apt. nxt Thursday. Not getting my hopes up but any news is good I guess. I have almost resigned myself to ALs and am getting my affairs in order. I can't believe how fast this hits u after initial onset. symptoms started in Mar and now I have trouble walking any distance and arms and hands r very weak. Has anyone else had this happen so rapidly?