lhagsjr
Distinguished member
- Joined
- Apr 25, 2007
- Messages
- 173
- Country
- US
- State
- PA
- City
- Philadelphia
Listen, as many of you know Im going through a terrible time just like all of you are. I basically have 3 main symptoms: 1.) Twitching(which waxes and wanes) 2.) Atrophy 3.) Shoulders clicking and popping. I have no answers.
Let me say this though, I see a lot of people on here complaining about the docs. Im sorry but I dont believe they are bad people. If you can still walk, talk, breath OK, and your EMG/biopsy are not suggestive of ALS what do you want them to do, just blurt out ALS? They have certain criteria they must follow in order to diagnose ALS. Some things in medicine are still, even in 2007, unsolvable and unanswered. Why do you want to be diagnosed with ALS so quickly? They cant do anything to help you at that point anyway. In addition, I have been on the board for 4 months and see a lot of people being told NO ALS, and I have yet to see someone come back after a original diagnosis of NO ALS and say they how have been diagnosed with it.
Listen, we are all extremely frustrated but Drs are just people too. They can only run the tests and interpret them. Sometimes I think we think they are more then human.
Let me say this though, I see a lot of people on here complaining about the docs. Im sorry but I dont believe they are bad people. If you can still walk, talk, breath OK, and your EMG/biopsy are not suggestive of ALS what do you want them to do, just blurt out ALS? They have certain criteria they must follow in order to diagnose ALS. Some things in medicine are still, even in 2007, unsolvable and unanswered. Why do you want to be diagnosed with ALS so quickly? They cant do anything to help you at that point anyway. In addition, I have been on the board for 4 months and see a lot of people being told NO ALS, and I have yet to see someone come back after a original diagnosis of NO ALS and say they how have been diagnosed with it.
Listen, we are all extremely frustrated but Drs are just people too. They can only run the tests and interpret them. Sometimes I think we think they are more then human.