Hello, and thanks very much for your responses. It's given me a bit more to chew on...
TB- I tried compression socks. Or, I should say I tried to get compression socks on and was so exhausted after I had to lie down. A stocking donner is in my future, I think. Apparently I will never be able to realize my dream of becoming a wrestler, as I can't even beat inanimate objects.
Laurie- I will look at the Vaso wraps as an option for sure. I had something similar for when I had my ACL replacement and there was risk for embolism.
Tillie- Thanks for the feedback. I wasn't sure if it was something expected or not. I'm not sure how much more gentle she can get before it becomes reiki! At the time, it seems she's barely touching me. She did her final year of training at a clinic for neuromuscular disorders- including those with ALS. What she was doing before was working, but only the last two weeks has resulted in sore muscles. Whatever I have (PLS or UMN onset ALS) can't have changed that quickly, so I'm hoping it's weather/stress/something else in combination with the massage. I will be putting in a call to the ALS clinic to see what their pt can tell me. Because I don't have obvious LMN involvement, I wasn't sure if sore=damaged, or just another facet of spasticity that I can ignore. I'll maybe give next week's session a miss.
Bill- Thanks for the tips. Feet up more, less salt. Sigh. I'm in the process of getting a pretty fancy chair that will even stand up for me and has a function where it will elevate the feet above the heart. I'm hoping that will help.
Ells- I find I really benefit from my sessions too. It's not just the actual rom stuff, but the feeling that I am doing something productive to help myself. Unfortunately, due to fatigue, I am not able to do anything more active unless I want to sleep for days after. Weirdly enough, I find my spasticity is quite mild, but muscle fatigue is what's kicking my behind.
Chally- That's exactly my worry. Charlene's experience has made me doubly so.
Thanks all