andyvaughn
Distinguished member
- Joined
- Feb 12, 2008
- Messages
- 144
- Reason
- CALS
- Country
- US
- State
- ca
- City
- thousand oaks
Well, Team Iplex has finally done it. We have written to Insmed, Genentech and Tercica, the media outlets, etc. What we have gotten is a public policy statement by Insmed apologizing that they can only give Iplex to Italian ALS patients. Genentech and Tercica have maintained silence.
Now we are taking the show on the road. On November 11, 2008 PALS and CALS from around the globe are marching on DC, our permits are pulled for the Capitol Terrace, the police have assured us this is a highly visible and accessible area. We are publicly requesting, demanding, begging for PALS worldwide to be given access to Iplex immediately.
If you want to join us, you would be welcomed by all PALS/CALS with open arms. We just want the same rights to pharmaceutical therapy that the Italians are currently enjoying, I don't think that is too much to ask for my husband, or for any PALS in the world...Jim and I will be there, hope to meet many of you there too....
Andrea - wife of Pals Jim
Now we are taking the show on the road. On November 11, 2008 PALS and CALS from around the globe are marching on DC, our permits are pulled for the Capitol Terrace, the police have assured us this is a highly visible and accessible area. We are publicly requesting, demanding, begging for PALS worldwide to be given access to Iplex immediately.
If you want to join us, you would be welcomed by all PALS/CALS with open arms. We just want the same rights to pharmaceutical therapy that the Italians are currently enjoying, I don't think that is too much to ask for my husband, or for any PALS in the world...Jim and I will be there, hope to meet many of you there too....
Andrea - wife of Pals Jim