Hello Atsugi,
I do apologise if you feel that I´m waisting people time, it was no my purpose, of course. In fact, after my last experience, right now I appreciate time over anything else in the world and the last thing I´m interested in is waisting other people time.
The thing is that my last neuro didn´t disregard 100% the ALS as a possibility (although he told me that it was unlikely) despite of clean EMG and Neuro exam (performed by himself). This is why I have been requested for following up after 3 more (furthermore, I have been requested by this neuro to take more tests to disregard other source of the problem as miopahites, etc.. A kind of RMI on the muscles... Next week I will take this test.
My worries are regarding my symptoms (left leg weakness, right hand weakness, lack of right hand dexterity (I play piano and I notice that very much) and generic fatigue all the time. If I hadn´t that symptoms I would have forgotten ALS for ever. Additionaly, as I post on my first message, I got a x3 times over the average the glutamic acid on serum and I´m aware that abnormlatities on the glutamate cycle and increased serum level on plasma are common on PALS. Furthermore, I don´t have a diagnostic for all of that symptoms yet.
Clean EMG´s are the only thing that bring me something of hope regarding my current situation. As this is the only hopefull thing I have, I´m interested in knowing how reliable are at this time on a early potential ALS stage (There are a lot of cases where the abnormalities on the EMG where showed after some initial "negative" tests, on that fórum there are some cases...)
Regarding Horevo the last picture that I had is that she was worried because she was taking a treatment for MG but it was not working, I was not aware about any other update after that.
Sorry for such a long message, but I can not speak about this topic with anyonelse (I don´t want to worry my spouse, Friends...) until I don´t have a firm diagnostic (whatever it is).
Thank you to all of you again and sorry again if I have injured your sensitivity again.
My great encouragement to all the ones who are fighting his disease (patients & caregivers, familiars...).
Regards and happy new year (with delay).