- Joined
- Feb 5, 2022
- Messages
- 71
- Reason
- CALS
- Diagnosis
- 01/2022
- Country
- US
- State
- NC
- City
- Chapel Hill
I am glad to see this discussion about therapists. My husband was diagnosed January 24 (EMG with second opinion confirmation) at Duke and had his first appointment at Duke ALS center April 26. He has only right foot drop issues now, has had a limp for a year, and the indications are slow progression at present. We feel very fortunate to have early diagnosis and excellent care. We've spent this time educating ourselves and reaching out for support. We are moving to a more accessible house this month, have seen all our children and grandchildren, reconnected with old friends and family, traveled to California and Hawaii. He has contacted voice banking support, ALS NC. We have a lot to be grateful for; he has a positive attitude and is in excellent health otherwise, just can't walk like he used to. I am kind of a wreck and trying to find a therapist who takes our insurance. My PCP has offered me medication, but I take so many antihypertensive meds I'm reluctant to add any more. I am desperate to stay as healthy as I can so that I'll be able to care for him, but I am anxious, with panic attacks and insomnia. I have been reading much of the ongoing discussions on this site and even though I haven't really participated, have found comfort and felt a part of this group. I don't know how to start a separate thread so hope it's ok that I'm sort of introducing myself here. I do feel calmer right now, just writing to "my people"
Thank you
Thank you