azgirl
Senior member
- Joined
- Jan 20, 2014
- Messages
- 961
- Reason
- PALS
- Diagnosis
- 12/2013
- Country
- US
- State
- AZ
- City
- Tucson
We met with a hospice provider yesterday and I am struggling with the decision to sign on. Really the only reason I am considering it is to get the morphine in the house to help with a peaceful pasśing, not that I'm ready for that quiet yet. I do not want to give up my neurologist and RT either
My support system is large and includes full-time caregivers and lots of help from family and friends. Spiritually I feel solid. So I don't need those hospice services.
The intake nurse knew nothing about ALS which was obvious from her comments and questions. Don't know what to do because I fear choking to death and I really want the drug assistance to make this next step as peaceful as it can be.
Any advice?
My support system is large and includes full-time caregivers and lots of help from family and friends. Spiritually I feel solid. So I don't need those hospice services.
The intake nurse knew nothing about ALS which was obvious from her comments and questions. Don't know what to do because I fear choking to death and I really want the drug assistance to make this next step as peaceful as it can be.
Any advice?