As the days go by I have watched my husband live with ALS. We have cried a million tears. As you know it is very difficult to put into words how painful this is. Since the day my husband was diagnosed we have found that there is a loneliness that enters your life, an isolated feeling. We left the doctor's office feeling terrified, numb, and totally exhausted from all the months of worry wondering what was wrong with my best friend. There are many challenges to face. We have found very little in the way of support. I said this from day one, it is like you are out on a clothesline. You don't know which way to go, what to do. As the days go by and you realize that this is here to stay, this is really what they say it is you start to search. You search for the best care you can find. You reach out. What happens though when you reach out and there is not alot there? You become more frightened but you find a strenghth within to fight this fight because this is your loved one and when you love someone you take care of them to the best of your ability. The day we married the priest said through sickness and in health and that is what my husband and I have been doing for many years and will continue to do so.
We have decided that we know how lonely and isolated we feel so we want to help others, we are writing a book together and we are going to try and bring more awareness in hope that we can make a difference not only in our lives but the lives of others who suffer.
One thing I do have to say though is the one place where we do find wonderful support is here. Everyone is here is so kind and caring and we thank you for that.
Sandy.
We have decided that we know how lonely and isolated we feel so we want to help others, we are writing a book together and we are going to try and bring more awareness in hope that we can make a difference not only in our lives but the lives of others who suffer.
One thing I do have to say though is the one place where we do find wonderful support is here. Everyone is here is so kind and caring and we thank you for that.
Sandy.