lurking CALS

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nkrohan

New member
Joined
Jun 25, 2018
Messages
3
Reason
CALS
Diagnosis
12/2017
Country
Uni
State
OR
Hi, I'm Nikki. My husband was diagnosed with ALS last December. I have spent the last year lurking on this site and finally feel like I am getting to the point where I may want to start asking questions. My husband Colin is 51. I am 36 and I have a 9 and 11 year old whom he is stepdad to. He has what we think is a slow progressing form of ALS, but then again its hard to compare. It started in his hands and is impacting his tongue a little at this point (a year in). He is a mountain bike photographer, so its been a year of bucket-list adventures. We are on round 5 or 6 of radicava and have a great Doctor/ALS clinic in Portland, OR. As I prepare myself for my role as a CALS and full time working mother, I know this is going to be really hard and that this forum will be very helpful.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,427
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
Welcome, Nikki. I'm glad Colin is pursuing his bucket list. I'm sure some of your fellow Oregonians will chime in. Of course, we'll support you however we can.

Best,
Laurie
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,140
Reason
PALS
Diagnosis
07/2017
Country
US
State
Oregon
I’m here to welcome you as a fellow Oregonian. I’m glad you found us.
 

chally

Very helpful member
Joined
Apr 23, 2015
Messages
1,255
Reason
PALS
Diagnosis
02/2015
Country
US
State
wv.
Welcome to the forum

Colin might also want to ask questions ,
Many of our members are athletes

Chally
 

Nuts

Forum Supporter
Extremely helpful member
Joined
Feb 23, 2014
Messages
2,503
Reason
Lost a loved one
Diagnosis
01/2014
Country
US
State
North Carolina
Hi Nikki, and welcome. I'm glad you've decided to join in the discussion. Ask away--or just chat. As you already know, this is a wonderful group.

Becky
 

KateEmerson

Distinguished member
Joined
Apr 23, 2016
Messages
438
Reason
Lost a loved one
Diagnosis
09/2013
Country
US
State
MA
Welcome Nikki
 

swalker

Very helpful member
Joined
Dec 11, 2014
Messages
1,069
Reason
DX MND
Diagnosis
07/2014
Country
US
State
Colorado
Welcome! You will find lots of helpful folks here.

Steve
 

Angiegal

Distinguished member
Joined
Feb 15, 2017
Messages
301
Reason
PALS
Diagnosis
09/2015
Country
CA
State
Ontario
Welcome aboard NikKi

Angie
 

Bestfriends14

Forum Supporter
Senior member
Joined
May 7, 2017
Messages
621
Reason
CALS
Diagnosis
05/2017
Country
CA
State
Alberta (AB)
Welcome, Nikki.
 
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