- Jun 25, 2018
Hi, I'm Nikki. My husband was diagnosed with ALS last December. I have spent the last year lurking on this site and finally feel like I am getting to the point where I may want to start asking questions. My husband Colin is 51. I am 36 and I have a 9 and 11 year old whom he is stepdad to. He has what we think is a slow progressing form of ALS, but then again its hard to compare. It started in his hands and is impacting his tongue a little at this point (a year in). He is a mountain bike photographer, so its been a year of bucket-list adventures. We are on round 5 or 6 of radicava and have a great Doctor/ALS clinic in Portland, OR. As I prepare myself for my role as a CALS and full time working mother, I know this is going to be really hard and that this forum will be very helpful.