Hi all.
Many of you have supported me for this past year and followed my story and I am, can't believe it, finally diagnosed after being in limbo for about 10 months. I saw a rhuemy today in Denver who said "Well, you have lupus. No doubt about it." As many of you know, I just returned from Mayo with no real answers and I was just following up with the rhuemy I saw prior to going. Anyway, he said that with everything else ruled out and my ANA and anti-DNA antibodies getting higher each time I've been tested that he was confident in the diagnosis. He said "you're not crazy but you have a crazy disease." The jury is still out on that one, ha ha.
I feel confident in the diagnosis and I've been put on immuno-suppresive drugs and prednisone to try to kick it into remission.
Just want to thank everyone from the bottom of my heart for the support...this forum kept me going. And to anyone presenting with breathing issues...I would strongly recommend seeing a rheumy or at least have docs run in-depth autoimmune blood work.
I was POSITIVE that I had ALS when this started. I hope that this gives others hope that there truly are so many things that mimic it you can't ever be sure. Be patient and don't give up hope.
I hope it's okay for me to pop in every once in awhile. I thought about looking for a lupus forum but it feels like cheating, ha ha.
God Bless,
Tracy
Many of you have supported me for this past year and followed my story and I am, can't believe it, finally diagnosed after being in limbo for about 10 months. I saw a rhuemy today in Denver who said "Well, you have lupus. No doubt about it." As many of you know, I just returned from Mayo with no real answers and I was just following up with the rhuemy I saw prior to going. Anyway, he said that with everything else ruled out and my ANA and anti-DNA antibodies getting higher each time I've been tested that he was confident in the diagnosis. He said "you're not crazy but you have a crazy disease." The jury is still out on that one, ha ha.
I feel confident in the diagnosis and I've been put on immuno-suppresive drugs and prednisone to try to kick it into remission.
Just want to thank everyone from the bottom of my heart for the support...this forum kept me going. And to anyone presenting with breathing issues...I would strongly recommend seeing a rheumy or at least have docs run in-depth autoimmune blood work.
I was POSITIVE that I had ALS when this started. I hope that this gives others hope that there truly are so many things that mimic it you can't ever be sure. Be patient and don't give up hope.
I hope it's okay for me to pop in every once in awhile. I thought about looking for a lupus forum but it feels like cheating, ha ha.
God Bless,
Tracy