3 day workup coming on 16th Jan, you should look into this if your concerned. I don't know where you are from, but mine is in Houston, but i think most ALS clinics offer this. I've got multiple symptoms going on.. Yes, this is very difficult with young ones, but if it's ALS, it's not a death sentence, it is a managable disease, and the statistics are not accurate regarding life span! It took me a while to get past the panic stage, and still don't know what i have. Look at it this way, whatever it is, lifethreatning or not, you at least have been given a chance to spend your time wisely, with your family, etc, rather than unlucky people whos lives are taken suddenly.
good luck with your appointment, make sure you keep a journal of what's happening and write your questions down or you will forget 1/2 of what you wanted to show him and ask!