4tloml
Senior member
- Joined
- Sep 15, 2014
- Messages
- 578
- Reason
- CALS
- Diagnosis
- 04/2013
- Country
- US
- State
- CA
- City
- Suburban
We've been checking my husband's O2 during the day but hadn't at night. He has complex sleep apnea and REM Behavior Disorder (RBD) and has been on melatonin and a "Respironics BiPAP autoSV Advanced" for around 2 years at night. He's been on the Trilogy on and off throughout the day since January. We only bring the Trilogy when we travel, however, for day and night. Brought it into clinic this month, RT checked it out and she and doc decided to monitor overnight O2. Did that last night--it was running around 86-88 all night long.
He's always saying he's sleeping great, feels rested in the morning, etc. And I do know he sleeps through the night without much tossing and turning any more. But isn't that awfully low O2 sat for night?
Laurie, you wrote on a diferent thread (I searched for answers before starting another one):
Do you think tweaking the settings could have enough impact? Is this the type of situation when the docs order oxygen to be bled through the BiPAP? What is the risk for that leading to too much CO2?
We have yet to hear from the doc, but I want to be prepared with questions/concerns when we do. I get more good info here than anywhere else, so any input would be much appreciated! TIA!
He's always saying he's sleeping great, feels rested in the morning, etc. And I do know he sleeps through the night without much tossing and turning any more. But isn't that awfully low O2 sat for night?
Laurie, you wrote on a diferent thread (I searched for answers before starting another one):
It is always good to consider the possibility that as ALS progresses, settings that are static pressure control (IPAP/EPAP locked in) or even dynamic (volume target set or apnea-controlled) settings could use tweaking, but most people on the list don't want to fool w/ it, so I've mostly stopped saying it.
Do you think tweaking the settings could have enough impact? Is this the type of situation when the docs order oxygen to be bled through the BiPAP? What is the risk for that leading to too much CO2?
We have yet to hear from the doc, but I want to be prepared with questions/concerns when we do. I get more good info here than anywhere else, so any input would be much appreciated! TIA!