- Oct 30, 2007
After watching my mother go thru ASL and die from it 30 years ago, now I have it. I have been studying her progression & ASL for the past 30 years. I has been slowly coming on for the past at least 3 or 4 years. I blacked out last December for about 20 minutes. No one was home so when I woke up I felt OK and went about my normal Saturday. I had many doctors and tests the next few days that found nothing. About a month later I started losing my ability to speak slowly over the next 8 months. I lost my job in July due to not being able to speak. They said other than that I was doing a super job. I knew what it was when I was seeing close to a dozen doctors. All there tests came back normal. In July I saw a couple of neurologists The best one said I had ASL. My problem is my tongue which affects my speech and swallowing of food & liquids. Lost from 185 lbs to my current 125 due to eating & drinking problems. Also have a limp with my left leg that started at about the same time as my speech problem. Have no family and friends have been about 0 since this. My wife who I married over 20 years ago even talks of leaving. My condition not getting any worse other than the 2 areas affected at first. With no insurance without a job I can not afford more tests. Just see my regular doctor once a month to help me however he can. I have a strong will and believe this has helped me more than anything.