Zina Perry
Member
- Joined
- Jan 5, 2008
- Messages
- 29
- Reason
- Loved one DX
- Diagnosis
- 12/2007
- Country
- US
- State
- Texas
- City
- Rusk
Hello,
Things are not going well for us! Mike, my husband was diagnosed in Dec. 2007. His onset is respiratory. The last 2 weeks, his oxygen levels are dropping to about 88. We have started him on oxygen and he uses the bipap all the time. He quit eating about 7 days ago and is living on Resource 2.0. He says he isn't hungry and gets angry if I mention food. I have tried cooking things that I know that he likes and that the aroma would increase his appetite. I have noticed that he is starting to have secretions on each side of his mouth and his voice is getting faint. The respiratory doctor told me there is nothing they can do. He has lost 6 pounds in 2 weeks. What do I need to do to help him and make him comfortable. It is getting difficult for him to shower and shave, but I keep getting the shower stool and encouraging him to get in the shower. He used to love showers so much and took 2 a day. He does not want to know the symptoms that go with ALS. I have notice that he also has twitching in his legs, but he said he could not feel it. Is this common? I enjoy reading all of your posts and learning what I can, but I know that ALS does not have a consistant pattern. All of you are in my prayers daily.
God Bless,
Zina Akin Perry
Rusk, Texas
Things are not going well for us! Mike, my husband was diagnosed in Dec. 2007. His onset is respiratory. The last 2 weeks, his oxygen levels are dropping to about 88. We have started him on oxygen and he uses the bipap all the time. He quit eating about 7 days ago and is living on Resource 2.0. He says he isn't hungry and gets angry if I mention food. I have tried cooking things that I know that he likes and that the aroma would increase his appetite. I have noticed that he is starting to have secretions on each side of his mouth and his voice is getting faint. The respiratory doctor told me there is nothing they can do. He has lost 6 pounds in 2 weeks. What do I need to do to help him and make him comfortable. It is getting difficult for him to shower and shave, but I keep getting the shower stool and encouraging him to get in the shower. He used to love showers so much and took 2 a day. He does not want to know the symptoms that go with ALS. I have notice that he also has twitching in his legs, but he said he could not feel it. Is this common? I enjoy reading all of your posts and learning what I can, but I know that ALS does not have a consistant pattern. All of you are in my prayers daily.
God Bless,
Zina Akin Perry
Rusk, Texas
