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    • If you know someone that battled ALS, please add them here
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affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,135
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
A couple of months after diagnosis Chris met another local PALS through fb.

He and his wife came for morning tea to meet us. Chris used the food processor to mix up the last batch of scones he ever made (he was famous for his scones as a cafe owner). He couldn't manage to eat a scone himself.

At that time (around August last year) Pete had one completely paralysed arm, but was otherwise in great shape. We all formed a fast bond.

Within months Chris and I could see all the telltale signs - slight slurring, care drinking liquids and a slightly off gait.

Pete and his wife were stunned at how fast Chris then deteriorated and his death was a real wake up for them of the true terminal nature of what was happening in their own home.

Over the past six months I have often visited and began helping out a bit with Pete as his wife has had her own health issues. So I was back to changing and making up electric beds, emptying commodes and bottles, doing peg feeds. I was honoured that Pete would allow me to help, and especially when he allowed me to take him 30 km away to a doctor appointment for a skin cancer removal.

On Tuesday this week, with most of the family under the influence of the flu, Pete developed severe breathing issues. The local hospital had a hard time assisting him, and he spent the night there under the watchful eye of his wife with them attempting to keep him comfortable. Sadly Tuesday was her birthday.

He was then transferred to palliative care yesterday and passed away peacefully at 8.50 last night with his family by his side.

Pete was a man who had lived an incredibly full life. He was born in a POW camp, and was nearly 5 years old when the family was released. He lived many years here in Australia on what some would consider 'hippy communes' - what I would call 'living with nature'.
I feel blessed that I could help out just a little and was a part of the family and friends supporting Pete. I just wanted a remembrance to him to be printed here, even if they were never members here.

Pete did the ice bucket challenge here at my place last year, though a modified one, he did an ice bucket over his arm (his good arm). Pete was 73 years old.

Fly free Pete, you beat this f*cker.
 

Green Queen

Very helpful member
Joined
Mar 30, 2015
Messages
1,294
Reason
DX MND
Diagnosis
4/2016
Country
AUS
State
Western Australia
City
By the beach
Tillie,
The love you have for your friend shines throughout your post.
Thank you for sharing his story with us.
I too, am glad he's free.
God bless you and all the good you do, Janelle xxxxxxx
 

vickim

Very helpful member
Joined
Sep 20, 2012
Messages
2,255
Reason
Friend was DX
Diagnosis
03/2012
Country
US
State
MO
City
aaaa
So very sorry for your loss. It sounds like he was a great fella. He and Chris are eating scones now.
 

tripete

Senior member
Joined
Dec 5, 2014
Messages
998
Reason
PALS
Diagnosis
12/2014
Country
US
State
PA
City
Lancaster
it is tough to face the days ahead
 

davbo49

Senior member
Joined
Sep 18, 2014
Messages
603
Reason
PALS
Diagnosis
04/2014
Country
US
State
kanas
City
kanas
...................:(
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
8,314
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Very sorry for your loss of your friend. May he fly free
 

MaxEidswick

Legendary member
Joined
Sep 1, 2013
Messages
5,567
Reason
PALS
Diagnosis
08/2013
Country
US
State
Texas
City
Pinehurst
>So very sorry for your loss. It sounds like he was a great fella. He and Chris are eating scones now.

Ditto that!

>it is tough to face the days ahead

yup :-(
 

chally

Very helpful member
Joined
Apr 23, 2015
Messages
1,255
Reason
PALS
Diagnosis
02/2015
Country
US
State
wv.
City
renick
thanks tillie for sharing your friends story. you are a double cals and know the ropes and the scores i value your judgements and experiences. 1love chally
 

azgirl

Senior member
Joined
Jan 20, 2014
Messages
956
Reason
PALS
Diagnosis
12/2013
Country
US
State
AZ
City
Tucson
Yes, fly free Pete...

Tillie, you make the lives of so many pAls better including all of us here. I'm sure Pete felt the same.

Hugs,
Kay
 

Atsugi

Moderator emeritus
Joined
Jan 11, 2011
Messages
5,188
Reason
Lost a loved one
Diagnosis
12/2010
Country
US
State
FL
City
Orlando
Tillie is a true friend to us all.
 

gooseberry

Extremely helpful member
Joined
Jul 2, 2014
Messages
3,457
Reason
Lost a loved one
Diagnosis
5/2014
Country
US
State
FL
City
Tampa
Tillie I am so very sorry for your loss. I think one of your precious gifts is the ability to help others even when particularly difficult for yourself. Your love for all of us shines through.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
8,071
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Tillie, Pete sounds like a great guy and you and Chris were/are great friends. I'm sorry for your loss.

--Laurie
 

Barbie

Extremely helpful member
Joined
Dec 29, 2007
Messages
2,659
Reason
Lost a loved one
Diagnosis
01/2007
Country
US
State
FL
City
orlando
hugs sweet friend
 

JimInVA

Forum Supporter
Senior member
Joined
May 29, 2014
Messages
797
Reason
CALS
Diagnosis
04/2014
Country
US
State
VA
City
Poquoson
Thank you for giving us a glimpse of who Pete was. I'm sorry for your loss.

Jim
 

Green Queen

Very helpful member
Joined
Mar 30, 2015
Messages
1,294
Reason
DX MND
Diagnosis
4/2016
Country
AUS
State
Western Australia
City
By the beach
Hey Tillie, I hope today was a happier day...
Lots of love, Janelle xxxxxxx
 
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