Micaela
New member
- Joined
- Nov 2, 2019
- Messages
- 4
- Reason
- PALS
- Diagnosis
- 07/2019
- Country
- US
- State
- MA
- City
- Boston
Hello to all,
I am 66 years old and I have been diagnosed with upper & lower ALS in July 2019. I have problems with my voice, swallowing, weak hands, twitching and cramps. I have no respiratory issues or limb problems. Indo feel exhausted most of the time, however.
Just the thought of the next meal makes me feel nauseated. My partner does his very best to make different tasty meals and i do take some highly concentrated lactose free protein drinks. I'm managing to just keep my weight although i have been told to try and put weight on.
The thought of feeding tube really scares me. Can someone give me some guidance, personal experience....
Thank you
Micki
I am 66 years old and I have been diagnosed with upper & lower ALS in July 2019. I have problems with my voice, swallowing, weak hands, twitching and cramps. I have no respiratory issues or limb problems. Indo feel exhausted most of the time, however.
Just the thought of the next meal makes me feel nauseated. My partner does his very best to make different tasty meals and i do take some highly concentrated lactose free protein drinks. I'm managing to just keep my weight although i have been told to try and put weight on.
The thought of feeding tube really scares me. Can someone give me some guidance, personal experience....
Thank you
Micki