My husband is tired and feeling ill all the time. He was given provigil to take only when he needs the extra energy for a special event because the affect wears off if you use the drug a lot. He can't take rilutek because of side effects so he is on niacin for cholosterol and lexapro for depression. He is losing his desire to live because he feels so tired and weak all the time. We have a wonderful supprt system of family and friends but that is not enough to keep him going. He is paralyzed in both arms, on a bi-pap, but can walk and eat ok. DX six months ago and it is moving quickly. I thought maybe there was some drug etc. that you are taking to help the sick feeling because that is what is weighing him down the most, not the paralysis. When you are healthy sometimes you wonder what you would do if you had a terminally ill sickness and you think you would travel, take that cruise or whatever but he is too weak to even consider those options. I want whatever time he has to feel as good as he can because he tells me everyday that this is not living. I ask him to describe the feeling and he said it is just extreme exhaustion and knowing tomorrow will not feel any better, not any real pain as such. I love him very much but I don't know how to help him. He would opt for assisted suicide but I won't let him go there. Any input would help on what makes you feel better physically.
Phyl
Phyl