Hi bossman...you know we mean it when we say we understand and most of us have been there at one time or another..I have just had a week in bed with a bug, maybe from my little grandson plus a chest infection..did not eat and hardly drank for 3 days..and I have kidney problems as well as this crap..I felt SO weak, and one day did write to my husband, just let me die... It sounds like you are similar to me in where you are with this...my legs are on the borders of not working any more, left arm is giving up and eating drinking is now difficult....BUT somehow we have to get over this hurdle, one day at a time....with as much help as we can get. I keep reading about feeding tubes and dont want one, but the inevitable will happen, how are you with that...maybe that will help with one problem if you can get that sorted out...everyone says to get it sorted out early, as with oxygen...wish I could take my own advice on this, I am also fighting doing either of those 2 things. Pain and sleeping..yes I am in that place as well, will be seeing neuro on friday and asking for help with that.
Keep posting and ask for help, even if it is only emotional, you KNOW we are all going through pretty much the same, so can totally understand where you are. We all need that emotional support to get through each day..we all need each other....please use us...(and now I need to read this reply and take note for myself!) We are here for you.