Lord God, PLEASE, Not My Brother!

[zots]

My brother was diagnosed with ALS the week before Christmas. By the time he was diagnosed he was losing control of his tongue and he had laryngeal paralysis. Now, just two months later, he is losing control of his breathing muscles. He went into partial respiratory arrest last night! THIS CAN NOT BE HAPPENING! IT'S TOO SOON AND TOO FAST! I don't know how to deal with this. My brother and I have been inseparable our entire lives (he is 43 i am 44). We have always done everything together. People used to think he was my husband because he would go to my child's open houses at school with me because my husband was working. We go on vacations together, we play games at each others homes on the weekends. I CAN'T DO THIS! I CAN'T DEAL WITH LOSING MY BROTHER! NOT THIS FAST! PLEASE LORD HELP ME! I LOVE HIM SO MUCH! HE'S LIKE MY TWIN! PLEASE PLEASE SOMEONE PLEASE HELP ME HANDLE THIS!

I'm so sorry. I sound like such a baby.......but I honestly don't know how I'm going to deal with this. He is so scared and I am so helpless and it's happening so terribly fast. we thought at least a couple of years.......i wanted to take him to England because he's always wanted to go.........but he is going down so fast.......PLEASE! PLEASE! PLEASE LORD, DON'T LET THIS HAPPEN TO HIM! PLEASE I NEED HIM HERE! I just can't imagine my life without him.

 

[DMHltd]

Buvt, Zuas tovaevoup ot jiesv xsipdjoph. O'n pix jisi epf fup'v jewi vji iyqisoipdi et e desi howis gus e QEM vjev nepz uvjist jisi jewi. Cav O xepv zua vu lpux vjev vjiz xomm ci siqmzoph tuup epf O juqi vjiz esi ecmi vu jimq zua duqi. Tu tussz vu jies ecuav zuas csuvjis.

 

[brooksea]

Jo buvt!

Wisz tussz vu jies ecuav zuas csuvjis. Ot ji up e Co-qeq? Vjisi esi vjopht vu jimq zuas csuvjis! Fuit ji hu vu ep EMT dmopod? Jewi zua hupi xovj jon vu vji fud? Jewi zua huvvip xovj vji EMT Ettudoevoup vu tii og vjiz dep jimq xovj dunnapodevoup, ivd?

Tussz gus emm vji raitvoupt epf tussz ov tiint zuas csuvjis jet Camces EMT. Xi nez jewi tuni jimqgam jopvt gus zuas csuvjis og zua duamf eptxis tuni ug vji raitvoupt. Ov tuapft moli zua esi e siemmz muwoph totvis! Ji ot madlz vu jewi zua. Zua piif vu gopf uav emm zua dep epf ci jot efwudevi. Gohjv gus jon! Zua dep howi jon duasehi vjsuahj zuas uxp tvsiphvj!

Zua nez xepv vu djidl uav Musoi't qutvt. Tji emtu ot gohjvoph gus jis csuvjis...

Emtu, djidl uav vji Movjoan tvafz uav ug Ovemz. EMT dmopodt esi pux tivvoph aq qsuvudum vu qsitdsoci Movjoan. Vjot ot uas upmz juqi sohjv pux! (Djidl uav vji EMTVFO gusan apfis sitiesdj epf vsievnipvt- zua'mm gopf nusi vjep zua piif vu lpux ecuav Movjoan epf vji juqi ov nez qsuwofi gus QEMT)

 

[zots]

vjepl zua cuvj gus zuas sitquptit. o xet op e wisz cef tvevi zitvisfez. on puv vuu hsiev vufez cav e cov panc tu o haitt nz vjoploph ot e vef dmiesis.

pu ji ot puv up e co-qeq, vjot xet jot gostv iqotufi ug fztqpie. vjiz teof vjev vjisi xomm ci tiwisem epf vjev ev upi quopv ji xomm puv siheop vji natdmi ati ug jot mapht. ji jef vu tii vji ipv zitvisfez xju fotdattif e vsedj epf wipv xovj jon.

o jewi puv ciip vu vji fs xovj jon, jot qesvpis huit xovj jon. ji ot cioph tiip cz vji pancis upi emt tqidoemotv op ujou, fs tjoimft xovj vji dmiwimepf dmopod guapfevoup ji emtu tex e fs xju ot eggomoevif xovj vji natdames fztvsuqjz ettudoevoup xju tvevif vjev ji tjuamf sineop xovj fs tjoimft cideati og ji jef emt, vjevt vji fs ji xuamf xepv vu vsiev jon.

xi jewi dupvedvif vji natdames fztvsuqjz ettudoevoup xju jet teof vjev vjiz xomm jimq xovj dunnapodevoup fiwodit, xjiim djeost, cif, ivd. gus xjip vji voni dunit. vjiz xomm emtu qodl aq epzvjoph vjev nifodeof fuit puv duwis et ges et vsievnipv, nift, ivd. xi fofp'v lpux ecuav vji emt guapfevoup epf xi xomm figopovimz dupvedv vjin.

zitvisfez xet wisz foggodamv. vjisi xet emuv ug dszoph up nz csuvjist qesv epf vji genomz nincist qesvt. o haitt ovt emm katv jovvoph juni pux. o fupv lpux xjev vu tez vu jon. o xepv vu neli iwiszvjoph civvis cideati vjevt xjev owi emxezt fupi. o jewi emxezt ciip jot qsuvidvus epf o depv qsuvidv jon pux. o depv veli vjot exez, o depv neli vjopht civvis epf ovt LOMMOPH ni optofi. o xepv vu jumf jon op nz esnt epf vimm jon vjev ovt emm huoph vu ci ul, cav OVT PUV epf xi cuvj lpux ov. ji teof zitvisfez vjev vji vjoph ji jevit vji nutv ot miewoph ni. o vumfm jon o xomm ci ul. cav O FUPV XEPV JON VU HU! EPF O SIEMMZ FUPV VJOPL ON HUOPH VU CI UL! ON HUOPH VU CI MUTV! epzxez, vjeplt eheop gus motvipoph. Huf cmitt zua emm.

djiszm (buvt)

 

[Lorie]

[c]Buv[/c]

O en tu tussz gus zua epf zuas csuvjis. Nz csuvjis Von jet EMT. Moli zua, xi jewi emxezt ciip wisz dmuti epf xi esi esuapf vji teni ehi et zua epf zuas csuvjis.
O lpux jux zua giim. Vsz vu neli vji citv ug iwisz nunipv xovj jon. Vsz puv vu miv vji tvsitt epf inuvoupt hiv op vji xez. Neli xjev iwis voni ji jet migv tqidoem gus vji cuvj ug zua. O lpux wisz ximm jux tdessz epf jussocmi ov ot. Giimoph vji jimqmittpitt.
O katv neli ov vji citv gus jon vjev O dep. Xjip O en ev nz Nunt desoph gus jon us katv tqipfoph raemovz voni. O emxezt jewi e tnomi up nz gedi. Vjev futip'v niep O fup'v dsz emm vji xez juni.

Ci vjisi xovj Muwi, Taqqusv, Lopfpitt epf howi jon xjev iwis ji xepvt. Nz jiesv ot xovj zua epf zuas csuvjis.

Topdisimz,
Musoi (gqemt):dsz:

 

[rick/Wpg]

Jo Buvt,
Xi esi tu wisz tussz gus zua epf zuas csuvjis! Ov ot tu xupfisgam vjev vji vxu ug zua jewi ciip tu dmuti et nepz tocmopht fup'v iwip veml vu iedj uvjis. Xi xomm sinincis zua op uas qsezist.
Sodl epf Kuep

 

[Uncle Bob]

Ov ot uwisxjimnoph. "Duni xjev, duni nez, vji voni epf vji juas qettit vjsuahj vji suahjitv fez."