PrimaVera
New member
- Joined
- Apr 23, 2020
- Messages
- 9
- Reason
- PALS
- Diagnosis
- 03/2020
- Country
- US
- State
- CT
- City
- Shelton
Hi Everyone,
How many of you had Bulbar Onset ALS (slurred speech, trouble chewing and swallowing)? Has anyone found ways to slow or reverse progression of those issues? I tried Neudexta for about two weeks, and it helped quite a bit, but made me very anxious, had a heavy feeling in my chest, and it seemed to irritate my bladder. I will be restarting once a day to see if a half dose can make a difference w/o ramping up negative side effects.
How many of you had Bulbar Onset ALS (slurred speech, trouble chewing and swallowing)? Has anyone found ways to slow or reverse progression of those issues? I tried Neudexta for about two weeks, and it helped quite a bit, but made me very anxious, had a heavy feeling in my chest, and it seemed to irritate my bladder. I will be restarting once a day to see if a half dose can make a difference w/o ramping up negative side effects.